Contact Us

Volunteers will help match you with other families in your state or country. Visit our Local Support Group for families of Children who have Hemiplegia.

Infant and Childhood Stroke are two causes of hemiplegia or hemiplegic cerebral palsy. Visit our sister website, Kids Have Strokes, to learn more.

Join the Hemi-Kids Email Support Group

When you found out that your child had a disability, did you feel like you were the only parent going through this?  We would like for you to know that you are not alone.  You can read more about what parents are saying about the Hemi-Kids list.

Hemi-Kids is a specialized online mailing list for parents of children who have mild to moderate hemiplegia, hemiplegic cerebral palsy, or hemiparesis. 

You can join the Hemi-Kids online support group by going to the link below.  Just follow the instructions.

Please note - the Hemi-Kids list is specifically designed for families of children who have a primary diagnosis of hemiplegia or hemiplegic cerebral palsy and not more general cerebral palsy. There are challenges that are specific to children who have hemiplegia such as weakness and neglect of one side of the body; able-bodied on the other side; walk independently before the age of two years; may have additional issues with seizures, learning, cognition, speech/language, vision, and behavior. 

If your child has another type of cerebral palsy, such as diplegia (both legs affected), triplegia (both legs and one arm affected), or quadriplegia (all limbs affected), or if your child requires feeding tubes or assistance with walking past the age of three years, please contact one of the following email support groups, which can better address these types of support needs.

• CPParent

• Our Kids

If you're not sure if your child would benefit from Hemi-Kids, please feel free to email us and we can give you more information.  Email us with questions or for names of other groups.

If your child has hemiplegia or hemiplegic cerebral palsy (regardless of cause - unilateral (one side) stroke or bleed, TBI, metabolic conditions, other rare conditions, etc.), please follow the instructions below TO JOIN HEMI-KIDS.

1. Join Hemi-Kids List by clicking on this link

2. You will receive an email from ICORS.org, confirming your identity (this keeps someone from subscribing you without your permission)

3. Reply to the ICORS.org message as instructed.

4. You will also receive an email survey from CHASA.org. 

5. If you do not receive these emails, please check your Junk or Spam email box. If you do not receive a survey form, it is because your email provider is blocking our mail and there's not much we can do about that.

6. After you respond to both emails, if your child has mild to moderate hemiplegia, we will add you to the Hemi-Kids list. If your child has another diagnosis, we will refer you to other sources of online support.

7. Note to HOTMAIL subscribers.  We cannot add you to the Hemi-Kids list, so you will need to use another email address. Hotmail is refusing to accept any email from the Hemi-Kids or CHASA email addresses.
   
   This means that if you were to try to join Hemi-Kids using the Hotmail address you would be unlikely to receive the email containing our survey. If you are  an existing Hemi-Kids member, you are unlikely to receive any emails from the list.
   
   There is, unfortunately, absolutely nothing that we can do about this, other than to recommend you use a different email provider. Hotmail is rapidly getting a very poor reputation for their sub-standard spam filtering precisely because of issues such as this.  Yahoo has a free email service.

The first few messages of new members are reviewed and then sent to the list.  This helps protect the list from unwanted advertisements and spam.  It also allows you time to learn how to follow the list guidelines.

Regarding Announcements to the Hemi-Kids list and newly formed 501(c)(3) organizations

Please do not join Hemi-Kids in order to promote a product, harvest email addresses or with the intention of using the Hemi-Kids list to promote a newly launched website or organization. 

If your organization has received permission from the IRS to operate as a 501(c)(3) and you would like for us to send an announcement to the Hemi-Kids list regarding this or would like to participate in exchanging links to our website, please mail your request with a copy of your 501(c)(3) letter to CHASA. Please provide the names and contact information for your executive director, board of directors, phone numbers, email addresses, and website address. We receive many requests to promote products and organizations and will answer you as soon as possible. Unfortunately, there are some groups and individuals who wish to take advantage of parents of children who have disabilities, therefore, we will only announce federally approved 501(c)(3) organizations.

To learn more about hemiplegia, hemiplegic cerebral palsy, or hemiparesis, visit the Children's Hemiplegia and Stroke Association website.

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The information contained in this web site and on the Hemi-Kids listserv are not a substitute for medical advice or treatment, 
and the site owners recommend consultation with your doctor or health care professional.