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Encouragement from Parents
Why we don't like our name
Volunteers will help match
you with other families in your state or country. Visit our Local
Support Group for families of Children who have Hemiplegia.
Infant and Childhood Stroke are two
causes of hemiplegia or hemiplegic cerebral palsy. Visit our sister
website, Kids Have Strokes,
to learn more.
Parents Think about the Hemi-Kids Email Group
share some of the thank you messages that Hemi-Kids has received
over the past year.
continues to amaze me everyday. He is so determined. And, I
work to build his self-esteem so he won't care what people
think. And, I found this list which saved me from going
insane. Try to take it one day at a time, be honest with
yourself about your feelings, let yourself cry...You don't
know what the future holds--it might surprise you.
a note to say thank you for all the letters of support and
encouragement I have received since I joined this list. My
husband and I sat and read them all and we were both in tears
but we both said we felt so much better after reading them. We
realize the future may be different but with our support and
love and that of his brother we know our son will achieve the
best he can, regardless of that he is our baby and my heart
swells whenever I look at him.
daughter has only had her foot braces for 2 weeks or so, and
we haven't really been in public with them much. Today was a
totally new experience, we were in town, going in and out of lots of shops. Boy, did we get many comments about her
foot (what is that? did she have an accident? poor little girl
sprained her ankle?) If I had not been prepared for this I'm
sure it would have upset me a lot. But thanks to all of you
sharing your experience I just casually said "No, this
helps her walk better“ and was actually quite proud of my
little girl and myself. I love this list!
right when you say how lucky you are to have found this list.
None of us knows what tomorrow will bring, but at least we
have the true support of wonderful people who understand. You
are fortunate that your son was diagnosed early, so you can be
strong advocates for him from the
beginning. (Written to parents of a child just diagnosed with
hemiplegia from another list parent)
you all were an answer to my prayers. I got more answers in
one day than I had in 6 months. For the first time you
realize, "Hey, there are quite a few of us out
here", and you don't feel so alone. Thinking you're alone
is a debilitating feeling when you are trying to heal. Thank
you again Nancy and Joni.
here to join the Hemi-Kids email list
To learn more about
hemiplegia, hemiplegic cerebral palsy, or hemiparesis, visit the Children's
Hemiplegia and Stroke Association website.